If 23 and Me goes bankrupt, they will sell all of the biometric data they’ve collected over decades to the highest bidder. Why can’t the US government step in to purchase the company and establish a public trust?
If 23 and Me goes bankrupt, they will sell all of the biometric data they’ve collected over decades to the highest bidder. Why can’t the US government step in to purchase the company and establish a public trust?
That’s speculation, not fact, and I also don’t agree that owning a thing necessarily means you can sell it in an unrestricted/unregulated manner (guns, tobacco, as well as other sensitive medical info can’t just be sold willy-nilly)— especially when the “it” is sensitive biometric data whose originators never agreed to share it. That’s the problem when you and the greedy corporations you’re defending assume implicit consent rather than to ask for it: it’s damaging to the public and invades these people’s medical privacy in the name of profit.
And whether 23andMe should be subject to HIPAA laws is debatable at best.
They DID agree to share it.
Should that have been an option? Probably not, but now you are talking about legislation with wider implications, not some half baked public trust to protect a small group of people.
There are other databases of genetic code out there you know. The FBI can potentially accuse you of a crime based on your cousin uploading info to a genealogy website.
https://www.palmbeachpost.com/story/news/crime/2023/02/06/police-are-using-genealogy-sites-to-solve-crime-heres-what-to-know/69826173007/
They did agree to share it but their children didn’t and a database this large is likely to have significant predictive effects on generations to come.
I saw in another comment.
That doesn’t negate the public interest in protecting such data, as I have said.
Besides, that clause may not hold up in court.
All the more reason for broader legislation than a half baked idea about buying just this one database.